Meeting of the Board of Regents | February 2009

THE STATE EDUCATION DEPARTMENT / THE UNIVERSITY OF THE STATE OF NEW YORK / ALBANY, NY 12234

 

TO:	VESID Committee
FROM:	Rebecca H. Cort
SUBJECT:	Independent Living Centers (ILCs)
DATE:	January 23, 2009
STRATEGIC GOAL:	Goals 2, 4 and 5
AUTHORIZATION(S):

 

 

 

 

 

SUMMARY

 

Issue for Discussion

 

The Regents will be informed about the history and roles of the Independent Living Center network. 

 

Reason for Consideration

 

The Independent Living Center network is authorized under NYS Education Law Article 23A Sections 1121–1124 to provide vital services and systems advocacy for greater integration, inclusion and independence of New Yorkers with disabilities. VESID administers the state-funded independent living network through 39 contracts with community-based, nonresidential, not-for-profit organizations that are managed and staffed predominantly by individuals with disabilities. 

 

Proposed Handling

 

              This item will come before the Committee at its February 2009 meeting for discussion.

 

 

Background Information

 

The Rehabilitation Act of 1973 was amended in 1978 to incorporate Title VII (Independent Living Services) in federal law and establish a national infrastructure of federally funded Centers for Independent Living.  In 1986, Title VII Part B formula grant funding was instituted and continues to provide discretionary funding to states to deliver independent living services and projects guided by State Plans for Independent Living (SPIL).

 

The passage of the Rehabilitation Act of 1973 improved access to vocational rehabilitation and educational services and advanced a framework for anti-discrimination protections for Americans with disabilities in federal law with the adoption of Section 504 of the Act.   The enactment of the law came about as a direct result of a burgeoning disability advocacy and rights movement led by a handful of courageous and visionary disability rights leaders.  One such leader, Ed Roberts, used an iron lung and founded the first Center for Independent Living while residing at the infirmary at the University of California at Berkeley because all the dorm buildings were inaccessible to him.  Ed Roberts and other leaders like him drew upon the wisdom and experience of earlier social philosophers from the 1940’s and 1950’s such as Bill Wilson’s Alcoholics Anonymous 12 Step self-help movement and the blind Justice, Jacobus Tembroeck’s philosophy of self-determination that became the cornerstone of the National Federation of the Blind.

 

These self-help philosophies took lessons from the social movements of the African Americans civil rights movement, the women’s rights movement and the gay rights movement of the late 1950’s, 1960’s and 1970’s culminating in a firestorm of validation and empowerment for Americans with disabilities. They were the first steps toward a new paradigm that asserted society’s obligation to accommodate disabilities and to accept disability as a natural part of the human experience. 

 

New York State’s Independent Living Center Network

 

The Center for the Independence of the Disabled in New York (CIDNY) in Manhattan founded in 1978 was the first ILC in New York State.  It was initially funded with federal Title I Innovation and Expansion funds.  In 1982, New York State Education Law Article 23A Section 1121–1124 created “Service Centers for Independent Living” and established the current State funding authorization for our network of centers.  In 1987, the program experienced its largest expansion growing from 16 to 34 centers with many new centers located in small upstate cities and rural communities.  Today, New York leads the nation with 39 state-funded independent living centers in 36 different counties and an annual budget of just over $12 million.  With the addition of approximately $4 million of federal funds, the program has a physical presence in 51 different sites and over 45 counties throughout New York (see site map attached). 

 

Independent Living Philosophy

 

What makes Independent Living Centers unique is a philosophy that is squarely committed to maximizing lifestyle choices, equal access and control for people with disabilities. All ILCs are governed by a board of directors comprised of a majority of people with disabilities who set policy and direction for the organization with most direct services provided by peer counselors who live with a disability.  As such, the NYS network of independent living centers is the only consumer-driven services network in New York State.

 

Independent Living Centers are consumer-controlled, community-based, nonresidential, not-for-profit organizations. By eliminating the option of residential programming within the ILC model, the commitment to consumer control is affirmed in that no center can exercise control over decisions consumers make in where they live, with whom they live and how they live their lives. 

 

Independent Living Services

 

The primary services provided by staff at ILCs include: peer counseling; information and referral; independent living and life skills training; benefits advisement and acquisition assistance; housing assistance and individual and systems advocacy.  Staffs represent individuals with a wide range of disabilities who draw on their personal experience with living self-directing lives.  ILC staff assist people with disabilities navigate complex service systems in order to maintain choice and control over their lives.  As such, ILCs become keenly aware of systemic obstacles New Yorkers face in living integrated, inclusive and independent lifestyles.  It is with this unique perspective that ILCs dedicate staff time and resources to systemic advocacy to ameliorate obstacles to employment, health care, social/recreational pursuits, education, transportation, housing, and other barriers to full participation in civic activities and citizenship. 

 

Individual Service Data and State Savings

 

• Over the past 15 years, ILCs have grown from a program of $6.9 million to $12 million and increased services from 36,000 to over 70,000 New Yorkers.

 

• ILCs have saved New York State an average of over $100 million a year by assisting people with disabilities to leave institutions for community living or by preventing institutional living by facilitating access to community-based supports and services. 

 

• Over 5,000 public and private businesses annually receive assistance from independent living centers in meeting the needs of customers with disabilities.  Family members and the significant others of people with disabilities are another sampling of constituencies that benefit from independent living services.

 

 

Systems Advocacy and Partnerships

 

New York State ILCs have helped to shape policy on national, state and local levels. Through federal and state partnerships with groups such as the National Council of Independent Living (NCIL) and the New York Association on Independent Living (NYAIL), consumer-driven service options and independent living philosophy have become cornerstones of the Federal Rehabilitation Act, the Individuals with Disabilities Education Act (IDEA) and the Americans with Disabilities Act (ADA).  Recent system reform efforts have focused on full implementation of the federal Help America Vote Act (HAVA) that allows for independent and private voting by people with disabilities and the federal Work Incentives Improvement Act that has advanced employment opportunities for New Yorkers with disabilities.

 

On the state and local level, ILCs have advanced accessible public transportation, enhanced integrated, accessible and affordable housing opportunities, the NYS Medicaid Buy-In Program and consumer-directed personal assistance services.   ILCs were instrumental in the creation of the New York State Nursing Home Transition and Diversion Waiver that became fully operational in 2008 and ILCs currently serve as important stakeholders on the NYS Most Integrated Setting Coordinating Council (MISCC).   The MISCC is committed to aligning services provided by State agencies to effectively promote living, learning and earning in least restrictive settings.

 

For a more complete breakdown of people served by ILC and annual inventories of outcomes of community and systems change efforts by ILC, see www.vesid.nysed.gov/lsn/ilc/toolbox.htm

 

Key VESID Partners

 

The New York State Independent Living Council (NYSILC) is an equal partner with VESID and the Commission for the Blind and Visually Handicapped (CBVH) in the development and evaluation of New York’s federal State Plan for Independent Living (SPIL). The SPIL comes before the Regents every three years for approval. NYSILC operates as a not-for-profit organization with Council membership appointed by the Regents every December for two renewable three-year terms.

 

The New York Association on Independent Living (NYAIL) is the trade association of dues paying member ILCs from across New York State.  NYAIL is comprised of approximately 32 member organizations at present.  NYAIL partners with VESID to advocate for ILC funding and quality programming through training, mentoring, and technical assistance to member organizations. 

 

Diversified Funding and Expansion

 

The $12 million in New York State aid to localities funding serves as the base funding to operate ILCs.  ILCs obtain additional resources and revenue from a wide range of sources mostly for restricted, time limited, consumer-specific services.  The most common and diversified services provided by ILCs include:

 

 

 

 

 

 

Recommendations:

 

              Regents are encouraged to visit their local ILC to see a program in action, meet staff and disability community leaders, and learn how these community-based organizations are contributing to closing the gap in achieving self-sufficiency for people with disabilities. A listing of NYS ILCs and contact information is attached.

 

 

Attachments

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• NYS INDEPENDENT LIVING CENTERS
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•        ILC                                                                          County(s) Served
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• ALBANY                                                                                                      Albany
• Laurel Lei-Kelley
• Executive Director
• Capital District Center for Independence (CDCI)
• West Mall Office Plaza
• 875 Central Avenue, South 4
• Albany, NY  12206
• (518) 459-6422 V & TTY
• (518) 459-7847 Fax                
• dwerner@cdciweb.com
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• ALBANY / Schenectady                                                                          Schenectady
  
  CDCI  Schenectady Satellite
• Office of Disability Services
• 105 Jay Street, Room 2, City Hall
• Schenectady, NY  12302-1503
• (518) 382-5199 ext. 5346
• (518) 000-0000 TTY
• dwerner@cdciweb.com
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• AUBURN                                                                                                   Cayuga
• Tracy Murphy
• Executive Director
• Options for Independence (OFI)
• 75 Genesee Street
• Auburn, NY  13021
• (315) 255-3447 V & TTY
• (315) 255-0836 Fax
• options@optionsforindependence.org
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• BATAVIA                                                                                               Genesee
• Robert W. Fleming
• Executive Director
• Genesee Region Independent Living Center (GRILC)
• 61 Swan Street
• Batavia, NY  14020
• (585) 343-4524 V & TTY
• (585) 343-6656 Fax
• igeneseeregion@rochester.rr.com     
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• BINGHAMTON                                                                                                          Broome
• Maria Dibble
• Executive Director
• Southern Tier Independence Center (STIC)
• 24 Prospect Avenue
• Binghamton, NY  13901
• (607) 724-2111 V & TTY
• (607) 772-3600 Fax
• mdibble@stic-cil.org
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• BRONX                                                                                                     Bronx
• Rosemary Dackerman
• Interim Director
• Bronx Independent Living Services, Inc. (BILS)
• 4419 Third Avenue
• Bronx, NY  10457
• (718) 515-2800
• (718) 515-2803 TTY
• (718) 515-2844 Fax
• rosemary@bils.org        
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• BROOKLYN                                                                                                        Kings
• Marvin Wasserman
• Executive Director
• Brooklyn Center for Independence of the Disabled (BCID)
• 27 Smith Street, Suite 200
• Brooklyn, NY  11201
• (718) 998-3000
• (718) 998-7406 TTY
• (718) 998-3743 Fax
• mwsasserman@bcid.org
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• BUFFALO                                                                                                   Erie
• Douglas Usiak
• Executive Director
• Western New York Independent Living, Inc. (WNYIL)
• 3108 Main Street
• Buffalo, NY  14214
• (716) 836-0822 V & TTY
• (716) 835-3967 Fax
• djusiak@buffalo.edu
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• BUFFALO / NIAGARA FALLS                                                                    Niagara
• William Kane
• Director
• Independent Living of Niagara County (ILNC)
• 746 Portage Road
• Niagara Falls, NY  14301
• (716) 284-4131
• (716) 284-3230 Fax
• (888) 567-6454 Toll Free
• bkane@wnyilp.org
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• BUFFALO / NAILS                                                                                  Erie
  
  WNYILP Native American Satellite                                                   Cattaraugus
• Cynthia Printup-Harms
• Program Director                                                    
• Native American Independent Living Services (NAILS)
• c/o Western New York Independent Living Project, Inc.
• cynthiaph@nails.wnyilp.org
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• CORNING                                                                                                 Steuben
• Diane DeMuth                                                                      
• Executive Director
• AIM Independent Living Center (AILC)
• 271 East First Street
• Corning, NY  14830
• (607) 962-8225 V & TTY
• (607) 937-5125 Fax
• demuth@aimcil.com
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• CORNING / Elmira                                                                                          Chemung         
• AIM Independent Living Center
• Elmira Office
  
  2028 Lake Road
  
  Elmira, NY 14903
  
  (607) 733-3718
  
  (607) 733-7764 TTY
  
  (607) 733-0180 Fax
  eaimoffice@aimcil.com
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• CORTLAND                                                                                                        Cortland
• Mary Ewing
• Executive Director
• Access to Independence of Cortland County (ATI)
• 26 North Main Street
• Cortland, NY  13045
• (607) 753-7363 V & TTY
• (607) 756-4884 Fax
• maryew@odyssey.net
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GLENS FALLS                                                                 Warren

• Karen Thayer                                               
• Executive Director
• Southern Adirondack Independent Living (SAIL)
• 71 Glenwood Avenue
• Queensbury, NY  12804
• (518) 792-3537
• (518) 792-0505 TTY
• (518) 792-0979 Fax
• kannthayer@aol.com
• GLENS FALLS / Ballston Spa                                                                   Saratoga
  
  SAIL Ballston Spa
• 418 Geyser Road, Country Club Plaza
• Ballston Spa, NY  12020
• (518) 584-8202
• (518) 584-4752 TTY
• (518) 584-1195
• gfilc@adelphia.net
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• HARLEM                                                                                                  New York
• Christina Curry
• Executive Director
• Harlem Independent Living Center (HILC)
• 289 St. Nicholas Avenue
• Lower Level
• New York, NY  10027
• (212) 222-7122
• (212) 222-7198 TTY
• (212) 222-7199 Fax
• (800) 673-2371 Toll Free
• cexec@hilc.org
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• ITHACA                                                                                                   Tompkins
• Lenore Schwager
• Executive Director
• Finger Lakes Independence Center (FLIC)
• 215 Fifth Street
• Ithaca, NY  14850
• (607) 272-2433 V & TTY
• (607) 272-0902
• flic@clarityconnect.com
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• JAMESTOWN                                                                                                 Chautauqua
• Marie Carrubba
• Executive Director
• Southwestern Independent Living Center, Inc. (SILC)
• 843 N. Main Street
• Jamestown, NY  14701
• (716) 661-3010
• (716) 661-3012 TTY
• (716) 661-3011 Fax
• marie@ilc-jamestown-ny.org
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• KINGSTON                                                                                                          Ulster
• Sue Hoger
• Executive Director
• Resource Center for Accessible Living (RCAL)
• 592 Ulster Avenue
• Kingston, NY  12401
• (845) 331-0541
• (845) 331-8680 TTY
• (845) 331-2076 Fax
•  rcal@hvc.rr.com
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• LONG ISLAND                                                                                          Nassau
• Patricia Moore
• Executive Director
• Long Island Center for Independent Living, Inc. (LICIL)
• 3601 Hempstead Turnpike, Suite 208
• Levittown, NY  11756
• (516) 796-0144
• (516) 796-6176 En Espanol
• (516) 796-0135 TTY
• (516) 796-0529 Fax
• licil@aol.com
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• MANHATTAN                                                                                                      New York
• Susan Dooha
• Executive Director
• Center for Independence of the Disabled in New York (CIDNY)
• 841 Broadway, Suite 301
• New York, NY  10003
• (212) 674-2300
• (212) 674-5619 TTY
• (212) 254-5953 Fax
• sdooha@cidny.org
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• MANHATTAN        / QUEENS                                                                           Queens                    
• CIDNY Queens
• 137-02A Northern Boulevard
• Flushing, NY  11354
• (646) 442-1520
• (718) 886-0427 TTY
• (718) 886-0428 Fax
• sdooha@cidny.org
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• MASSENA                                                                                              St. Lawrence
• Jeff Reifensnyder
• Executive Director
• Massena Independent Living Center (MILC)
• 156 Center Street
• Massena, NY  13662
• (315) 764-9442 V & TTY
• (315) 764-9464 Fax
• mindepli@twcny.rr.com
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• MIDDLETOWN                                                                                         Orange
• Cheryl White                                               
• Executive Director
• Action Toward Independence (ATI)
• 130 Dolson Avenue, Suite 35
• Middletown, NY  10940
• (845) 343-4284 V & TTY
• (845) 342-5269 Fax
• cwhite@warwick.net
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• MIDDLETOWN / Monticello                                                                Sullivan
  
  ATI Monticello Satellite
• 33 Lakewood Road
• Monticello, NY 12701
• (845) 794-4228 V & TTY
• (845) 794-4475 Fax
• aitmalkine@verizon.net
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• NEWBURGH                                                                                                         Orange
• Doug Hovey
• Executive Director
• Independent Living, Inc. (ILI.)
• 5 Washington Terrace
• Newburgh, NY  12550
• (845) 565-1162
• (845) 565-0337 TTY
• (845) 565-0567 Fax
• dhovey@myindependentliving.org
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• OLEAN                                                                                                 Cattaraugus
• Leonard X. Liguori
• Executive Director
• Directions in Independent Living (DIL)
• 512 West State Street
• Olean, NY  14760
• (716) 373-4602 V & TTY
• (716) 373-1382 Fax
• info@oleanilc.org
• ONEONTA                                                                                            Delaware
• Christine Zachmeyer
• Executive Director
• Catskill Center for Independence (CCFI)
• P.O. Box 1247
• 6104 State Highway 23
• Oneonta, NY  13820
• (607) 432-8000 V & TTY
• (607) 432-6907 Fax
• ccfi@ccfi.us
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• PLATTSBURGH                                                                                  Clinton
• Andrew Pulrang                                                      
• Executive Director
• North Country Center for Independence (NCCI)
• 102 Sharron Avenue
• Plattsburgh, NY  12901
• (518) 563-9058 V & TTY
• (518) 563-0292 Fax
• andrew@ncci-online.com
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• POUGHKEEPSIE                                                                                    Dutchess
• Cynthia Fiore
• Executive Director
• Taconic Resources for Independence (TRI)
• 82 Washington Street, Suite 214
• Poughkeepsie, NY  12601
• (845) 452-3913
• (845) 485-8110 TTY
• (845) 485-3196 Fax
• c.fiore@taconicresources.net
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• Lauren Le Febvre
• Executive Director
• Tri Lakes Center for Independent Living (TLCIL)
• 43 Broadway, Suite 1
  
  Saranac Lake, NY 12983
  
  (518) 891-5295
  
  (518) 891-5293 Fax & TTY
  
  (866) 891-5295 Toll Free
  lauren@tlcil.org
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• ROCHESTER / RCIL                                                                                        Monroe
• Bruce Darling
• Executive Director
• Regional Center for Independent Living (RCIL)
• 497 State Street
  
  Rochester, NY 14608
• (585) 442-6470 V & TTY
• (585) 271-8558 Fax
• bdarling@rcil.org
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• ROCHESTER / CDR                                                                                Monroe
• Bruce Darling
• Executive Director
• Center For Disability Rights, Inc. (CDR)
  
  497 State Street
  
  Rochester, NY 14608
• (585) 546-7510 V & TTY
• (585) 546-5643 Fax
• bdarling@rochestercdr.org
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ROCHESTER / GENEVA                                                        Ontario               

• Center For Disability Rights, Inc. (CDR)
  
  1 Franklin Square
• Geneva, NY  14456
• (315) 789-1800 V & TTY
• (315) 789-2100 Fax
• www.rochestercdr.org
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• ROCKLAND                                                                                                        Rockland
• Dianne Powell
• Executive Director
• Rockland Independent Living Center (RILC)
• Nanuet Mall
• 75 West Route 59, Suite 2130
• Nanuet, NY 10954
• (845) 624-1366
• (845) 624-0847 TTY
• (845) 624-1369 Fax
• doianne.powell@rilc.org
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• STATEN ISLAND                                                                                           Richmond
• Lorraine DeSantis
• Executive Director
• Staten Island Center for Independent Living (SICIL)
• 470 Castleton Avenue
• Staten Island, NY  10301
• (718) 720-9016
• (718) 720-9870 TTY
• (718) 720-9664 Fax
• sicil@verizon.net
• SUFFOLK                                                                                                 Suffolk
• Edward Ahern
• Executive Director
• Self-Initiated Living Options, Inc. (SILO)
• 3680 Route 112, Suite 4
• Coram, NY  11727
• (631) 880-7929
• (631) 654-8076 TTY
• (631) 946-6377 Fax
• eahern@suffolkilc.org
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• SYRACUSE                                                                                                      Onondaga
• Tom McKeown                                              
• Executive Director
• ARISE
• 635 James Street
• Syracuse, NY  13203
• (315) 472-3171
• (315) 479-6363 TTY
• (315) 472-9252 Fax
• tmckeown@ariseinc.org
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• SYRACUSE / Oswego                                                                        Oswego
  
  ARISE Oswego
• Sabine Ingerson
• Project Director
• 9 Fourth Avenue
• Oswego, NY  13126
• (315) 342-4088
• (315) 342-8696 TTY
• (315) 342-4107 Fax
• singerson@ariseinc.org
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• SYRACUSE / Pulaski                                                                          Oswego
  
  ARISE Pulaski
• 2 Broad Street
  
  Pulaski, New York 13412
  
  (315) 298-5726
  
  (315) 298-5729 Fax 
• jpurdy@arise.org
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• SYRACUSE / Oneida                                                                         Madison
• ARISE Oneida
  
  121 Oneida Street
  
  Oneida, New York 13421
  
  (315) 363-4672
  
  (315) 363-4675 Fax
• (315) 363-2364 TTY
• TROY                                                                                                                Rensselaer
• Denise Figueroa                                           
• Executive Director
• Independent Living Center of the Hudson Valley (ILCHV)
• Troy Atrium
• 49 4th Street
• Troy, NY  12180
• (518) 274-0701 V & TTY
• (518) 274-7944 Fax
• dfigueroa@ilchv.org
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• TROY/Hudson                                                                                     Columbia
  
  ILCHV Hudson Satellite
• Jacqueline Bachman
• 802 Columbia Street
• Hudson, NY  12534
• (518) 828-4886
• (518) 828-2592 Fax
• (800) 421-1220 TTY
• jbachman@ilchv.org
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UTICA                                                                                  Oneida

• Burt Danovitz                                                        
• Executive Director
• Resource Center for Independent Living (RCIL)
• P.O. Box 210, 409 Columbia Street
• Utica, NY  13503
• (315) 797-4642
• (315) 797-5837 TTY
• (315) 797-4747 Fax
• burtdanovitz@rcil.com
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• UTICA / Amsterdam                                                                       Montgomery
  
  RCIL Amsterdam Satellite
• Ramon Rodriguez
• Program Director
• Resource Center for Independent Living
• 347 West Main Street
• Amsterdam, NY 12010
• (518) 842-3561
• (518) 842-3593 TTY
• (518) 842-0905 Fax
• ramon.rodriquez@rcil.com      

UTICA / Herkimer                                                                       Herkimer

RCIL Herkimer Satellite

• Sylvia Bunce
• Resource Center for Independent Living
• 401 East German Street
• Herkimer, NY 13350
• (315) 866-7245
• (315) 866-7246 TTY
• (315) 866-7280 Fax
• sbunce@rcil.com
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• WATERTOWN                                                                                     Jefferson
• Brenda Campany                                                                 
• Executive Director
• Northern Regional Center for Independent Living (NRCIL)

210 Court Street, Suite 107

• Watertown, NY  13601
• (315) 785-8703
• (315) 785–8704 TTY
• (315) 785-8612 Fax
• brendac@nrcil.net
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• WATERTOWN / Lowville                                                                                Lewis
• Karen Bolvier
• Northern Regional Center for Independent Living (NRCIL)
• 7632 North State Street
• Lowville, NY 13367 
  
  (315) 376-8696
• (315) 376-3404 Fax
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WHITE PLAINS                                                                  Westchester

• Joseph Bravo                                                         
• Executive Director
• Westchester Independent Living Center (WILC)
• 200 Hamilton Avenue, 2nd Floor
• White Plains, NY  10601
• (914) 682-3926
• (914) 682-0926 TTY
• (914) 682-8518 Fax
• jbravo@wilc.org
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• WHITE PLAINS / MOP                                                                              Westchester
• WILC Minority Outreach Project (MOP)
• c/o Westchester ILC
• 200 Hamilton Avenue, 2nd Floor
• White Plains, NY  10601
• (914) 682-3926
• (914) 682-0926 TTY
• (914) 682-8518 Fax                
• mcaballero@wilc.org
• WHITE PLAINS / Carmel                                                                            Putnam
  
  WILC Carmel Satellite
• Putnam Independent Living Services                    
• 1961 Route 6
• Carmel, New York  10512
• (845) 228-7457
• (845) 228-7459 TTY
• (845) 228-7460 Fax
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• YONKERS                                                                                               Westchester
• Mel Tanzman
• Executive Director
• Westchester Disabled on the Move, Inc. (WDOM)                                     Westchester
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• 984 N. Broadway, Suite L - 01
• Yonkers, NY  10701
• (914) 968-4717 V & TTY
• (914) 968-6137 Fax
•  info@wdom.org
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• Attachment